How do you decide what is ethical, and WHO gets to decide?

This news article in science mag, is an interesting perspective from parents considering undergoing gene editing of an embryo to correct a hearing mutation. This work has been presented to them by Denis Rebrikov, who wishes to follow in the footsteps of He Jiankui but this time to correct a hearing mutation, which is present in both the parents. This article gives a different point of view directly from the parents, which creates the discussion, about not only how do you decide what is ethical in terms of gene editing - but also, who gets to decide these guidelines. Are scientists reaching out enough to people that have specific mutation or disorders to ask them about whether their ethical standpoint is and how they would weigh the costs and benefits of these procedures?

Jack Richardson - pot luck

Link to news article:
https://www.sciencemag.org/news/2019/10/deaf-couple-may-edit-embryo-s-dna-correct-hearing-mutation

Photo: https://www.rawpixel.com/image/546019/premium-photo-image-baby-toddler-months-old